Children Wither Away As Govt’s Funds For Rare Diseases Dry Up | Delhi News
New Delhi: Ten-year-old Abdul Rehman, once full of life, wastes away at AIIMS, appearing frailer with every passing week. He suffers from Gaucher disease, a rare yet treatable lysosomal storage disorder. However, life-saving therapy was stopped last Sept after he ran out of govt funds.“His condition has since been deteriorating rapidly. We are helpless as…
